GCT Connect

Giant Cell Tumor Network

susan

Susan's Blog (4)

Corey is at rest 11/19/2009 @ 1:10PM

Corey put up a tremendous fight but was very tired. He closed his eyes and took his last breath while in my arms. He is now my big angel and will always be watching over me. I never left his side...he asked "never leave me Mom" and I stayed with him to the van to carry him to the funeral home. At the hospital they made a plaster print of his hand raised on a heart shape...just beautiful...with all the lines of his hand. He was always so funny...the nurses loved to care for him...he touched their… Continue

Added by susan on November 24, 2009 at 8:34pm — 8 Comments

Uncontrollable Tumors for Corey

Hello to all and thank you for all the prayers for Corey. I brought him back to the hospital November 5th for his hip bed sore and both heels. With no appetite and weight loss, the sores aren't healing well. Arrangements are made to hospitalize for antibiotics and nutrition and blood transfusion with a hemoglobin at 6.0. Two units prior to the 5th, 1 unit the day of admission...2 days later his count was back down to 6.4. CT-scans were done..neck to pelvis...we got news on Tuesday morning, Nov 1… Continue

Added by susan on November 13, 2009 at 3:26pm — 5 Comments

Clinical Trial is up next.

Corey finished his last set of chemo treatments and had scans which showed increased activity in the pelvic/sacrum tumors. We are waiting to hear of the date for the clinical trial. There are a few but which does he qualify for, we'll find out. The tumors cause nausea...I am giving him home infusions of Zofran..and sweating. Corey sleeps alot due to the pain meds he is taking. The nurses say they have never seen a patient on such high doses. Will let you all know what & when....I promise! Ta… Continue

Added by susan on October 18, 2009 at 8:15pm — 2 Comments

Please keep Corey in your prayers

On May 15, 2009 Corey was admitted to the hospital for severe cronic pain in the back of both thighs/knees. Within 2 days he had new MRI & CT Scans which showed that the tumors had taken over since mid February 2009, growing larger on the sacrum (which is pressing against the siatic nerve causing the pain) and liver. New tumors located on the pelvic bone and tissue. So he has stopped the Zometa (which was productive 2 years ago)and he has been on since February 2009. He is on new chemotherap… Continue

Added by susan on June 12, 2009 at 9:00pm — 8 Comments

Badge

Loading…

© 2009   Created by Heather on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service