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Giant Cell Tumor Network

yamen
  • Male
  • swaida
  • Syrian Arab Republic
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the medecl mistakes

Started Jun 2

 

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Kain and yamen are now friends
June 11
yamen added a photo
yamen
June 2
yamen updated their profile
February 17
yamen added a photo
Image007
xris2
February 15

Profile Information

About Me:
hi i am yamen my old 29 years i suffer from gct sence 5 years ago
i had don 2 surgery for remove this tumer so my thife brokin and my dr
disid to but a new goint and it was a big surgery it was in 20/1/2009
and i sent a new x ris .i stell in my home i cant woke tell now but the peine is bater and i can sleape at night
if any one know good dr can sent my x ris to hime and what is her loking
How do GCTs affect you?
GCT patient
Location of primary tumor:
right femur
Date of diagnosis of primary tumor:
1/5/2004
Treatment of primary tumor:
sargary wth removeing tumor

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Comment Wall (9 comments)

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At 1:55pm on June 11, 2009, Kain said…
I understand. The only issue is that there is a fee for him to review the x-rays online for the consultation. So you would have to contact him directly. Sorry Yamen. Also, your medical information is confidential. I am not permitted to discuss your condition without you present. I'll see what I can do.
At 11:53am on June 9, 2009, Kain said…
Hi Yamen. Dr. James Wittig (http://sarcoma.ws/) is an excellent Orthopedic Oncologist. He has online services and you can submit your x-rays directly to him over the internet. I had a GCT in the left distal femur in 2000 and then again in 2002. Since then no recurrence and lately I'm feeling great. Good luck! If you need me to reach out to him in advance please let me know.
At 12:27pm on May 24, 2009, hammoud fares amer said…
hi
At 5:42pm on March 16, 2009, Vanessa said…
I'm so glad that you had your surgery. I hope that you are finding peace and motiviation each day. Best of luck in your recovery. Keep me posted on your situation. Take care!
At 7:49am on February 25, 2009, Yonca said…
Tank you for your good wishes, I hope you'll get better soon...I am still going to physiotheraphy, hanging on and wishing for the best...
At 10:05pm on January 18, 2009, Suzanne said…
wow your x-ray is intense! Mine was at the bottom of my femur, near my knee. I wish you luck and that the doctors will do a better job this time! xoxox
At 6:39pm on January 6, 2009, Vanessa said…
Wow! That sounds terrible. I'm so sorry that you are going through this. It can be so aweful. Do you like the doctor from France better? Is he at least familiar with GCT? Also, are you on pain medication? I still take pain medication that definitely helps cut back on the nerve pain? Also, physical therapy is super important after a surgery. Did you have therapy to make you stronger after your surgeries?
At 12:43pm on January 6, 2009, Lauren said…
Yes! I will definitely post more about the Zometa. I am not pain free, I have began to start to manage my pain but I still feel a lot of pain even with the drugs. I haven't had ANY surgery yet, I have been reading a lot about it though just in case. My doctor is putting any of that off for now but the embolizations haven't started shrinking my tumor yet so they may need to do surgery some time. I will post my x-rays for all to see :) Thanks for the comment!!!
At 7:47pm on January 4, 2009, Vanessa said…
I'm so sorry to hear about you breaking your femur recently. I know how difficult it can be to be in bed for so long. Are you having your surgery with the same doctor? Did they specialize in giant cell tumors? How long was your physical rehabilitation last time?

And don't worry about your English! It's fine. Take care!
 
 

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