Giant Cell Tumor Network
-
lottie
- Female
- bournemouth
- United Kingdom
- Share
- Blog Posts
- Discussions (14)
- Groups (2)
- Photos (4)
- Photo Albums
lottie's Discussions
anyone had a itchy raised scar swelling?
2 Replies
Started this discussion. Last reply by caroline Sep 10.
Number of Recurrences?
Replied Sep 10
lorraine
Gifts Received
lottie has not received any gifts yet
Latest Activity
hey all ive got a hard lump half way down my old scar tissue in my tibia.. its very itchy and gettin bigger, its by my metal work too.. im not sure if its an infection or a recurrence so am just wondering if any1 else has experienced this?
Lottie xx
Hi all
I'm not to sure if its me wanting to get better to quicker than i should or because ive had four ops on my tibia and knee in the last two years.. but this recovery from the last operation is painful! I am getting my staples out tomoz thou.....
hello everyone,
I am having surgery in a few days time, am looking forward to a end to this tumor but not at the thought of surgery.. am having now a Massive tibial removal replaced with a metal tibia, knee and rods.. sounds gross but I guess it s...
Profile Information
- About Me:
- Hello to you all! am 34 year old mum off a 14 yr old girl named lauren.. I have had GCT of the top tibia right leg.. recurred two months after 1st Operation. have cement n metal n screws holding my leg up and still seem to be in a lot of pain even though each day is gettin a little easier.. am now recovering from 3rd op to remove tumor fron tibia.
- How do GCTs affect you?
- GCT patient
- Location of primary tumor:
- top tibia
- Date of diagnosis of primary tumor:
- jan 07 Aug 07 1st op 2nd op Feb 08 3rd Op 24th march 09
- Treatment of primary tumor:
- curattage an cement was big tumor size of small orange 1st time and plum 2nd so have metal plate and long screws that poke out the skin nearly. am recovering from futher curretage abd tendion removal from tibia.
- Facility treated at for primary tumor:
- Stanmore London UK
- Would you recommend this facility and it's Doctors to another GCT patient?
- yes
- Recurrence? If so, where?
- same area
- Date of recurrence:
- Oct 07 and Dec08
- Treatment of recurrence:
- same as above
- Facility treated at for recurrence:
- Stanmore
- Would you recommend this facility and it's Doctors to other GCT patients?
- yes
- Metastasis? If so, where?
- no
- Would you recommend this facility and it's Doctors to a fellow GCT patient?
- yes
- Tumor free?
- hopefully!
- Current GCT Status:
- recovering
am now recovering from operation no 3 removal of GCT from my tibia, am now 20 weeks pregnant, babys fine just long recovery now! am so impateint!
lottie's Photos
© 2009 Created by Heather on Ning. Create Your Own Social Network
Comment Wall (20 comments)
You need to be a member of GCT Connect to add comments!
Join this social network
You are sweet, thank you. You've been through three more surgeries than I... you are brave and doing remarkable! Gosh! Although all of our surgeries are difficult, we all face this uncertainty of a very strange illness that may or may not reoccur. Parts of our skeletal structure is being removed and replaced with cement, bone, metal rods and screws... it's all very strange! I try to just look forward, now we have two grand babies that will be born this year... one in June and one in October! When I catch myself feeling abit blue, I do my hair and makeup... look in the mirror and smile at myself, smille all day long sometimes... I can feel the happy endorphins and it helps me to stay on the upside of life... always. I enjoy every day and am grateful for it! I'm a little nervous about this GCT stuff, but I just push it out of the way and don't allow it to consume me. You are in inspiration to me... you've gone through all of this incredibly gracefully. I wish you the best, a fast and healthy recovery and I hope and pray that that d*** tumor is gone from you forever! Take care, Pam
View All Comments