Giant Cell Tumor Network
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Susen
- Female
- Fayetteville, NC
- United States
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- About Me:
- Just received the diagnosis of GCT today. At this point I have only had an MRI. I know that it is in the top of one of the bones right below my left knee. I am being sent to an ortho doc in Chapel Hill next week. So, any info you may have at this time I definitely will appreciate. I have been on the internet today trying to educate myself. I am concerned as to what my future entails now especially since I have a 15 month old daughter. So far my reading has been a little scary. I look forward to talking with all of the members on this site.
UPDATE: Had the GCT removed on 9-8-08. Removed with curettage and filled with bone cement. Still waiting for the biopsy report. So far so good. No pain, just stuck with a leg brace, so my movement is limited. Go back for a check up on the 17th.
- How do GCTs affect you?
- GCT patient
- Location of primary tumor:
- proximal tibia
- Date of diagnosis of primary tumor:
- 8/20/08
- Treatment of primary tumor:
- Removal by curettage and filled with bone cement.
- Facility treated at for primary tumor:
- Chapel Hill
- Would you recommend this facility and it's Doctors to another GCT patient?
- Yes
- Recurrence? If so, where?
- I had a check up in Feb 09 & was tumor free. Yeah!!!
- Metastasis? If so, where?
- no
- Tumor free?
- YES I AM!
- Current GCT Status:
- In the healing process. Doing much better. I have been back at work since the end of Oct. 08. At first it was hard being on my feet so long, but I think it helped me to get back moving. Now, I still have a little pulling pain with the scar tissue & it occasionaly aches. Not to bad.
Susen's Blog
Had my 1st surgery!
Hello all. I had my GCT removed from my proximal tibia on the 8th at Chapel Hill. It was 5x5x4cm. They scraped it out and filled it with bone cement. I stayed for one night and have been hanging out on the couch ever since. We still do not have the biopsy results yet. So far the pain has not been bad. I got a femoral block for pain the night of the surgery and they gave me percocet. I stopped taking the percocet on Thursday night and so far no more pain. I have a leg brace on and it is driving m… Continue
Posted on September 13, 2008 at 2:05pm — 4 Comments
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Keep me updated on the result of your MRI and what your doctor says. If you have any other questions, don't hesitate to ask. I've been there, done that, so please contact me anytime you need support.
I can understand you being scared. I also have a small child, and getting diagnosed as a mother was definitely a scary thing. I don't know what your future with this tumor holds, but I can tell you that we are all here if you need to talk or have questions. The road ahead of you will be tough, but we can all tell you what our experiences have been, and can hopefully offer you some friendly support.
Thanks so much for joining. If you want to, please keep up up to date on your treatment plan. Chances are, whatever treatment your doctor plans will be one that some of us have had before. Thanks again!