Sandra's Page

About Me:

Currently working as an accountant and tax professional. Also an RN student - hope to finish by the end of June 2008. This semester, I've had clinicals on a floor with lots of chest tubes. It's amazing to be able to truly understand the patient's experience, having been there within the last four years.

How do GCTs affect you?

GCT patient

Location of primary tumor:

Left Fibula

Date of diagnosis of primary tumor:

June 1998

Treatment of primary tumor:

Amputation of upper 1/3 of fibula.

Facility treated at for primary tumor:

Beaumont Hospital, Royal Oak, Michigan

Would you recommend this facility and it's Doctors to another GCT patient?

Definitely!

Recurrence? If so, where?

No

Metastasis? If so, where?

Yes, bilateral lungs

Date of metastasis discovery:

November 2003, surgery March 2004

Treatment of metastasis:

No real treatment, just VATS procedure (wedge resection) for biopsy to confirm GCT. My original surgeon at Beaumont (now the medical director for that hospital) advised me that patients do best when the lung tumors are left alone. At some point, when time and finances allow, I will go and see the thoracic specialist at Beaumont who is tracking all of the GCT patients for my original surgeon.

Facility treated at for metastasis:

St. Mary's Hospital, Grand Rapids, Michigan

Would you recommend this facility and it's Doctors to a fellow GCT patient?

No way!

Tumor free?

No, I have so many that they refuse to count them.

Current GCT Status:

As of 11-2006, two of the larger tumors had shrunk substantially.