Ian MacGregor's Page

About Me:

I am a 54 yr. old Canadian diagnosed with GCT of the sacrum Aug 2005. My tumour is very large and has been resected twice. I have had multiple embolizations, interferon therapy, as well as a 25 day radiation therapy session. My pain is severe but very well managed; although because I was a general contractor and carpenter, I will probably never work again. I also suffer from minor incontinence and nerve pain.
GCT has completely changed my life. I have had so many MRI's CT scans, chest X-rays etc. I have lost count. My tumour is in a "dormant" state but I am waiting for futher results from a CT scan showing a pea sized growth in the lungs.

How do GCTs affect you?

GCT patient

Location of primary tumor:

Sacrum

Date of diagnosis of primary tumor:

Aug 2005

Treatment of primary tumor:

Original unsuccessful surgery Sept 2005 followed by a second surgery Jan 2006.
Was told that disease was incurable after second surgury and that any futher treatments were unproven and likely to lead to the same result

Facility treated at for primary tumor:

CHUS Sherbrooke Qc

Would you recommend this facility and it's Doctors to another GCT patient?

Yes, for the pain clinic and radiology treatment, but not for the surgery

Recurrence? If so, where?

Sacrum

Date of recurrence:

March 2006

Treatment of recurrence:

Embolizations x3
Intereferon and aredia for 10 months
Radiation therapy

Facility treated at for recurrence:

McGill university orthapaedic clinic at Montreal General

Would you recommend this facility and it's Doctors to other GCT patients?

Absolutely, Dr. Robert Turcotte is a bone tumour expert

Metastasis? If so, where?

None yet

Would you recommend this facility and it's Doctors to a fellow GCT patient?

I would highly recommend McGill facilities, (Montreal General)

Tumor free?

Never since diagnosis

Current GCT Status:

Large tumour stable in the sacrum