Emely's Page

About Me:

My name is Emely, I'm 24 and at the moment I live back in my homecountry Sweden with my lovely boyfriend Jeff.

To make a story short:
I discovered my GCT february 2006 whilst I was living and studying in Gold Coast, Australia. I then had some pain in my left knee for a little bit more than half a year.

In January-06 I slipped at work (worked at a busy restaurant) and hurt myself like the 3rd time in a short time, Jeff told me to go to a doctor.
I was sent around to several doctors and specialists and then finally to do an X-ray in feb-06.

Late a friday night on february 3rd I had a missed call on my cell phone.
I was busy at work but went out quickly to check my messages. It was the last specialist I'd been to saying "Emely call me back urgently, the situation with your leg is really serious. " leaving me his mobile number.

I had a big block of ice in my stomach, feeling like I was about to faint. My guts were telling me something was really wrong.
Called him back and he told me I had a growth in my left tibia as large as a tennis ball, he didn't know if it was maliganent or benign but that I should have it checked up as soon as possible.

From there things went fast. Because I am swedish I am not entitled to the medical treatments in Australia, and my insurance would rather pay for me to fly "home" than paying for surgery in Australia.

There I was, after walking around happy as, 2 days later sitting on a flight back to my home country on the other side of the world.
Landed on Feb 6th in -11 degrees and 1 metre snow. Did operations and sat on my mom's couch for 3 months.

Then I went straight back to Australia on crutches. And the way I fought to come back to live a normal life..
Ask me about it..

How do GCTs affect you?

GCT patient

Location of primary tumor:

left tibia

Date of diagnosis of primary tumor:

3/2 2006

Treatment of primary tumor:

Tumor was removed and the remaining hole was filled with bone graft, or some people call it cement.
1 month later I had a fracture in the bone that was left on the outside and a 15cm plate and 4 screws was put in as well.

Facility treated at for primary tumor:

Karolinska universitetssjukhuset, Stockholm

Would you recommend this facility and it's Doctors to another GCT patient?

YES

Recurrence? If so, where?

No luckily I haven't..

Tumor free?

YES!! =)

Current GCT Status:

did my last 6month checkup in April, now I can wait a year between checkups!

Website:

http://emelysblogg.webng.com