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CAROL
  • 63, Female
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Recuperation from Surgery
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Started this discussion. Last reply by Pam Mar 24.

 

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I went for my 15 month check up// No tumor all good!!!!!
October 17
Heather and CAROL are now friends
September 6
CAROL added a blog post
I went to Duke No tumor return in 3 months. Walking without crutch no pain 95% back
July 20
CAROL updated their profile
June 22
CAROL added a blog post
I am doing well. I am happy almost pain free. Walking without the crutch or cane most of the time . I am 10 months post op now. The advil & physical therapy helped I am still going 3 x a week
May 28
CAROL added a discussion
Recupertion from Surgery
Has any one had problems from rehab after sx. I had gct removed from distal femur . Uncomplicated sx. in july 2008. I am still walkin with 1 crutch. My knee is too painful to walk long distance. I do try to work with out my crutch 1 day a week. an...
March 22

Profile Information

About Me:
I AM 62 YR OLD FEMALE DX WITH GIANT CELL TUMOR IN JULY 2008
How do GCTs affect you?
GCT patient
Location of primary tumor:
LEFT DISTAL FEMUR
Date of diagnosis of primary tumor:
JULY 2008
Treatment of primary tumor:
SURGERY TO REMOVE TUMOR / USED BURR TO REMOVE TUMOR/PACKED WITH CEMENT & RODS
Facility treated at for primary tumor:
UNIVERSITY OF DUKE DURHMAN DR BRIAN BRIGMAN
Would you recommend this facility and it's Doctors to another GCT patient?
YES/ YES
Recurrence? If so, where?
NO
Tumor free?
YES
Current GCT Status:
6 months tumor free off crutches slight limp yea!!!!!! a month feb 2009 I am back on 1 crutch my knee is so sore
Website:
http://CBP23834@VERIZON.NET
9 month check up. Tumor Free I am happy about not having a tumor. I am still in pain cannot walk with out assistance. My Dr. says I am at about 9 weeks recovery not at 9 months. He does not know why. I am so discouraged.

CAROL's Blog

CAROL

I went to Duke No tumor return in 3 months. Walking without crutch no pain 95% back

I went to Duke No tumor return in 3 months. Walking without crutch no pain 95% back Continue

Posted on July 20, 2009 at 5:48am — 2 Comments

CAROL

Improving

I am doing well. I am happy almost pain free. Walking without the crutch or cane most of the time . I am 10 months post op now. The advil & physical therapy helped I am still going 3 x a week

Posted on May 28, 2009 at 3:40am —

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At 6:52pm on October 23, 2009, tina puterbaugh said…
I went to my primary care dr. today and she refered me to a rumatologist!? I am so frustrated, they are going to try to drain it. My mass did not trans-illuminate. They still have not conducted any x-rays on my wrist. I am in so much pain and this rumatologist appt is in December! I worry about possible fracture of my radius in the mean time. I wish they would just give me the referal for the orthapedic surgeon. If you have any insight or advice please share! Thank you
At 4:53pm on October 23, 2009, tina puterbaugh said…
My rumatology appt is all the way in December! I will be in agony the whole time I know it. It makes me want to cry.
At 4:52pm on October 23, 2009, tina puterbaugh said…
So I just got back from my primary care dr appt and my mass did not transilluminate, however my dr reffered me to a rumatologist!? I am so frustrated! If anyone has some adsvice for me, it would be greately appreciated!
At 7:50pm on October 21, 2009, tina puterbaugh said…
Thank you Carol, I meant to say that I went to my primary care doctor 3 times, all with the diagnosis of a ganglion cyst... However I know better, especially after all the research I have done. I am in terrible pain as of right now. It feels like someone has taken a hammer to my wrist. My referal appt is this Friday. Thanks again for your insight and I will request an MRI.
At 1:40am on October 19, 2009, Dolina said…
HI Carol!!
I just wanted to say congratulations on the 15 month checkup!!
How are you feeling otherwise? I hope you are well..
At 5:34pm on August 24, 2009, Jess Gore said…
We're having the same problems with the economy but I don't think to the same degree as the US. I'm a dental assistant, so there are jobs out there, it's just my mental health right now that I don't know if I can get back to work.
At 7:49pm on August 22, 2009, Jess Gore said…
I'm glad to hear that you are doing well, 2 miles is pretty decent if you ask me! Sometimes I might get a pain in my leg if I step on it the wrong way or going up stairs carrying something too heavy. All in all a massive improvement. Do you work at all?
At 6:34pm on August 21, 2009, Jess Gore said…
I'm doing pretty well physically, my leg is pretty much normal now, only hurts if I overdo it. Mentally not as good, I'm out of work and don't know if I can get back to it yet.
At 7:41am on August 21, 2009, Professor Richard said…
Hi Carol, If doctors have an interest they are not showing it. I am in the process of searching for any peer reviewed articles that involves genetic testing in diagnosis. Apparently there is somoe research in being able to identify GCT earliar based on relocation of chromosomes. Bassically I am contacting any researchers of GCT to find out if they know of any familial connections for GCT. Center for Disease Control is also suggesting that I contact Health Departments for previous residences to see if there is a geographic clustering of GCT cases. While environmental toxins are not thought to be a cause, finding out if there are clusters of cases anywhere near where we lived .

My wife is recovering well. My daughter is having a tougher time as she had sacrum removed.

Richard
At 11:54am on August 17, 2009, Professor Richard said…
We know of only one family on the planet that this has happened to and they can identify cause as Paget's disease. Paget's disease has been ruled out. It starts to make me wonder if there was some exposure to some environmental toxin. Puzzling and it scares the heck out of us as we hope no one else in our family is affected.

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