GCT Connect

Giant Cell Tumor Network

Adam
  • Male
  • United States
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Latest Activity

Mary and Adam are now friends
September 30
Adam and ilana are now friends
March 13
Adam updated their profile photo
March 8
Adam is now a member of GCT Connect
March 8

Profile Information

How do GCTs affect you?
GCT patient
Location of primary tumor:
Right Ulna
Date of diagnosis of primary tumor:
July 2006
Treatment of primary tumor:
Resection of 5 inches of right ulna. Returned in 2007. I had my Right hand and half my forearm amputated. Right now it is in the lungs.
Facility treated at for primary tumor:
North Shore University Hospital
Would you recommend this facility and it's Doctors to another GCT patient?
Yes
Recurrence? If so, where?
Yes, Lungs and forearm
Date of recurrence:
November 2007
Treatment of recurrence:
Amputation of right forearm. The tumor moved to the lungs and I am being treated with denosumab.
Facility treated at for recurrence:
UPenn
Would you recommend this facility and it's Doctors to other GCT patients?
Yes
Metastasis? If so, where?
Lungs
Date of metastasis discovery:
November 2007
Treatment of metastasis:
Denosumab 1x a month.
Facility treated at for metastasis:
UPenn
Would you recommend this facility and it's Doctors to a fellow GCT patient?
Yes
Current GCT Status:
I better be beating it I'm still hear even though 1 doctor told me I would not be.

Comment Wall (3 comments)

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At 7:25am on June 22, 2009, Mary said…
Hi Adam, How is the trial going? Are you getting good results? I fly to Philadelphia this week for a consult with Dr. Staddon about getting into the trial. I hope you are doing well. Best wishes!
At 6:03pm on April 3, 2009, Pam said…
Good luck Adam! You've been through so much!! Take care and know we are all here for you! Pam
At 10:20am on March 9, 2009, Mary said…
Hi Adam,
Glad you found this site. I am pretty new to GCT Connect myself. I keep hearing such amazing things about Denosumab. I am curious did they try you on Interferon first or just go to Denosumab? I am using Interferon for growing lung metastases but I definitely plan on discussing Denosumab on my next Dr. visit. Good luck!
 
 

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