Half a year later, I'm on it again. And again, my apologies for not being on here sooner. Many folks have been asking about the situation. I'M ALIVE! Although pain killer withdrawals this past week have made me regret that just a bit.

So from where I left off--

Grumpy Tumor (aka peri spinal tumor) is still pretty much invisibile to radar since it hides out behind the metal cage in my back. But shortly after my last posting in the winter time, I experienced increased leg strength, loss of numbn… Continue

Hi Everyone!!!

I hope everyone is doing relativly well!!

well its been nearly 5 months since surgery and i am doing really well.. no pain!!! well not as bad as it was :-) for my last checkup went to the joint replacement assesment clinic she did some measurements and that 2cm difference in my leg length still.. but i dont feel any different..surgeon happy! i was only on crutches for 1 month..well it was a little hard with a baby and child to look after..

ummm.. go back to see my surgeon in au… Continue

I was first diagnosed with a GCT on 2/12/2009 about a month after my 21st birthday. I had waited a very, very long time to go to see a specialist. When I was 17 I was in a vehicle accident that injured my left hand that later resulted in surgery so I accredited my problems to my prior surgery, I didnt think the first specialist I saw helped very much at all. Shortly after my first surgery (a few years after my accident) I became pregnant with my son. I had my son Feb 23rd of 2008. When he was ab… Continue

I recently returned home from M.D. Anderson Cancer Center in Houston. Unfortunately after 7 months treatment with PegIntron, there is no sign of regression or calcification in my lung metastases. The small nodules which are too many to count are stable but the largest one continues to grow throughout treatment. My oncologist wants me to get in the Denosumab trial so I am headed to Philadelphia next week for an appointment with Dr. Staddon. If I can't get in the trial the other possible options a… Continue

On May 15, 2009 Corey was admitted to the hospital for severe cronic pain in the back of both thighs/knees. Within 2 days he had new MRI & CT Scans which showed that the tumors had taken over since mid February 2009, growing larger on the sacrum (which is pressing against the siatic nerve causing the pain) and liver. New tumors located on the pelvic bone and tissue. So he has stopped the Zometa (which was productive 2 years ago)and he has been on since February 2009. He is on new chemotherap… Continue