Hello to all and thank you for all the prayers for Corey. I brought him back to the hospital November 5th for his hip bed sore and both heels. With no appetite and weight loss, the sores aren't healing well. Arrangements are made to hospitalize for antibiotics and nutrition and blood transfusion with a hemoglobin at 6.0. Two units prior to the 5th, 1 unit the day of admission...2 days later his count was back down to 6.4. CT-scans were done..neck to pelvis...we got news on Tuesday morning, Nov 1… Continue

Saw the doc again today for my second post surgery appointment. Everything looks good, but he did get on to me a bit about my activity level, told me to town it down a bit for while. I guess there was more swelling than he thought there should be.

I go back in 3 months for a follow up. He said everything looked good, no more tumor!

My daughter is 22 years old and has just recently been diagnosed with a Giant Cell Tumor in her sacrum. Just curious if anyone with the same diagnosis has had their surgery at Vanderbilt Orthopedic Institute?

I started my denosumab trail this week, was quick, just one quick shot. they kept me for extra hour for monitoring. i had a slight headache and dizziness for first hour. i was able to goto work that day, i had a light headache threwout the day. i was fine the following day. i will be going for my nxt shot next week, will keep you posted.

Corey finished his last set of chemo treatments and had scans which showed increased activity in the pelvic/sacrum tumors.
We are waiting to hear of the date for the clinical trial. There are a few but which does he qualify for, we'll find out. The tumors cause nausea...I am giving him home infusions of Zofran..and sweating.
Corey sleeps alot due to the pain meds he is taking. The nurses say they have never seen a patient on such high doses.
Will let you all know what & when....I promise! Ta… Continue