Giant Cell Tumor Network
The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.
Sadly I found out on Friday that my little friend is back in my knee - same place as last time and obviously much smaller because it's been caught relatively early.
So - back to the original plan. I'll be going under the knife at some point in the next two weeks for a repeat of what we did last time - removing the original cement and replacing it again. Feeling surprisingly OK with it - I mean it's a risk we all live with and I've seen rates of recurrence range from 9% - 34%…Continue
Had my regular 3 month checkup yesterday, Just X-rays this time, all was good. No sign of return, which is good news. That leg feels weird just about all the time now, so I never know if what I am feeling is tumor, or surgery or just because I m old. Haha. Anyway, go back in three months for next checkup. Another MRI with contrast scheduled for that one.
On a happier note I will finish my masters degree in April, woo hoo! Will be glad to have that over and I am never going back to…Continue
Last month went for a MRI and the tumor was back. Wasn't what I wanted to hear but expected it since the last x-ray looked different. This time we are doing the cement since i grew a good amount of bone and my dr thinks it will hold. Which means a lot less down time for me..yaya!! We will have to see. She always lays out several surgery options just in case things don't go as planned. I'm optimistic either way it goes! ABC giant cell in third third metatarsal in left foot.
I had my one year check up on Thursday, October 23. Ironically this was exactly one year to the day from the last surgery. I was nervous about this one, the leg has been feeling weird again and I was sure I was headed for another surgery. Good news, all clear. They did an MRI with contrast and lung X-rays. All the scans were clear, no sign of recurrence and everything looked good. They want me back in three months.
Hope that everyone else is doing well. Will check back in three…Continue