Giant Cell Tumor Network
The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.
Wow, I noticed I haven't been on here in a while. Denosumab and LIMU finally gave me my life back. I read so many stories on here that just bring tears to my eyes, trust me, I've been there...just go to my profile page and read my story. My life is so wonderful now. No more trips to Philadelphia for treatments because Denosumab was approved by the FDA. I also started using a supplement called LIMU. It's fantastic...and I even make extra $ part time. Still have my tumor, it's stable, my…Continue
Went to the doctor last week. Had a good amount of bone growth over the cadaver bone . The doctor was shocked because she didn't think the surgery worked since I didn't have but a small amount of bone growth at the knuckle bone and none on the cadaver bone the previous time. God is faithful ! Much prayer was sent up. In physical therapy now with 50 percent weight baring working up to 75 percent by my next doctors appointment. Hopefully I will be at 100 percent then so I can go back to work!…Continue
So went in for my 9month check in. Had x-rays and an MRI. They think it has come back but aren't entirely sure. I will have a biopsy in January to confirm. No mention of another surgery yet. There is a shade around the bone graft so it may be that the graft hasn't taken. Or both. I've updated pics on my page.