GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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Welcome to GCT Connect.


Forum

Rachel

Is recurrance always in original site?

Started by Rachel 8 hours ago.

Kara

Denosumab Question

Started by Kara 1 day ago.

Alianna

Post-op, second time around 4 Replies

Started by Alianna. Last reply by Anita P Nov 17.

Blog Posts

susan

Uncontrollable Tumors for Corey

Hello to all and thank you for all the prayers for Corey. I brought him back to the hospital November 5th for his hip bed sore and both heels. With no appetite and weight loss, the sores aren't healing well. Arrangements are made to hospitalize for antibiotics and nutrition and blood transfusion with a hemoglobin at 6.0. Two units prior to the 5th, 1 unit the day of admission...2 days later his count was back down to 6.4. CT-scans were done..neck to pelvis...we got news on Tuesday morning, Nov 1… Continue

Posted by susan on November 13, 2009 at 3:26pm — 5 Comments

John N. Montgomery

Second Post Surgery

Saw the doc again today for my second post surgery appointment. Everything looks good, but he did get on to me a bit about my activity level, told me to town it down a bit for while. I guess there was more swelling than he thought there should be.

I go back in 3 months for a follow up. He said everything looked good, no more tumor!

Posted by John N. Montgomery on November 5, 2009 at 7:46pm

Pam

GCT in Sacrum

My daughter is 22 years old and has just recently been diagnosed with a Giant Cell Tumor in her sacrum. Just curious if anyone with the same diagnosis has had their surgery at Vanderbilt Orthopedic Institute?

Posted by Pam on October 28, 2009 at 2:36pm

Bryan

Denosumab trail started

I started my denosumab trail this week, was quick, just one quick shot. they kept me for extra hour for monitoring. i had a slight headache and dizziness for first hour. i was able to goto work that day, i had a light headache threwout the day. i was fine the following day. i will be going for my nxt shot next week, will keep you posted.

Posted by Bryan on October 21, 2009 at 9:00pm — 2 Comments

susan

Clinical Trial is up next.

Corey finished his last set of chemo treatments and had scans which showed increased activity in the pelvic/sacrum tumors.
We are waiting to hear of the date for the clinical trial. There are a few but which does he qualify for, we'll find out. The tumors cause nausea...I am giving him home infusions of Zofran..and sweating.
Corey sleeps alot due to the pain meds he is taking. The nurses say they have never seen a patient on such high doses.
Will let you all know what & when....I promise! Ta… Continue

Posted by susan on October 18, 2009 at 8:15pm — 2 Comments

Latest Activity

Rachel added a discussion
Is recurrence generally localized to the original site? I have been getting loads of pain in my shoulder, which I know could just be a strain but I spent two years backwards and forwards to GP with knee pain before I stepped down a step and smashe...
8 hours ago
tracy h still have alot of post op swelling. had to go for CT scan to make sure that i didn't need a drainage tube put back into neck...all was okay
18 hours ago
tracy h added 10 photos
18 hours ago
tracy h updated their profile
18 hours ago
Kara added a discussion
Does anyone know who the best person to contact about Denosumab is at the Washington Cancer Institute?
yesterday
lottie updated their profile
on Thursday
lottie and Rachel are now friends
on Thursday
lottie added 2 photos to the album 'amira'
on Tuesday
 
 

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