GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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Welcome to GCT Connect!

Hey, guys. Just wanted to post a notice here that we get an awful lot of membership requests that are spam. I do my best to weed these out, but if you're ever sent spam by someone on this site or you see it posted in any of the comments, please feel free to let me know. Also, if you are requesting membership, please be patient with me when it comes to approving your membership request, as I am a full time student and a full time stay at home mom. Thanks!

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Forum

Distal Femur Medial Femoral Condyle GCT 16 Replies

Started by Peter D. Last reply by B Nath on Sunday.

about denosumab 2 Replies

Started by Bruno André da Silva. Last reply by Bruno André da Silva Nov 18.

New member, GCT on my rib 7 Replies

Started by kallen. Last reply by James Nov 17.

Blog Posts

18 month update

Hi everyone,



Just popped back online for the first time in a few months and so pleased to see everyone is doing so well. It has now been 18 months since I joined the site and things are going really well. I've managed to retain 100% movement in my knee and whilst I won't be running anytime soon I can use the X Trainer and stair machine in the gym to try and keep fit and healthy.



Like a lot of people on this site I suffered more from the mental after effects than the… Continue

Posted by Thomas Ronan on November 3, 2014 at 8:33am — 3 Comments

Surgery #4, 1 Year checkup

I had my one year check up on Thursday, October 23. Ironically this was exactly one year to the day from the last surgery. I was nervous about this one, the leg has been feeling weird again and I was sure I was headed for another surgery. Good news, all clear. They did an MRI with contrast and lung X-rays. All the scans were clear, no sign of recurrence and everything looked good. They want me back in three months. 

Hope that everyone else is doing well. Will check back in three…

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Posted by John N. Montgomery on October 25, 2014 at 1:05pm — 5 Comments

Hi everyone ,

It's been a long time since I wrote on my page .. I was busy with my newborn and feeling healthy and on shape since my last surgery in 2012 . I took denosumab for a year 6 months before 3rd surgery and 6 months after .

Today I went to do my routine test and my big surprise was there imagine I was like a horse running dancing playing with my kids suddenly my doctor inform me that tumour is back and 4th surgeries needed .

So what Denosumab did ?!!

I am waiting as my surgery will be… Continue

Posted by Ronza on October 20, 2014 at 8:30pm

Good News- 18 month update

When I was getting surgery I used to desperately trawl this website for good news updates. For fitness advice. But it seemed that people who get over also don't return to the site.

I'm not over it. 

But just to recap. I used to dance. I started dancing at the age of 25 and it was my way to instantly be happy. I would dance if hell-fire was raining down on me or if there were knives under my feet. It was my respite from the trials and tribulations of the world. I didn't want to…

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Posted by Cassia Valazquez on September 12, 2014 at 4:00pm — 4 Comments

Fight against GCT

 

My mother, Minda was recently diagnose of having giant cell tumor in her spine specifically located at L5 vertebra. It started last March, she was walking in the house doing chores when she suddenly felt pain in her left legs. She thought its just originally pain. Come May and the pain is still there. She felt a bit relieved when taking some pain meds but it was getting worst. I asked her to seek medical help. We went to ortho and initial diagnose was degenerative disc disease. All…

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Posted by Leah Lacdao on August 26, 2014 at 8:09pm — 2 Comments

Latest Activity

Takae is now a member of GCT Connect
Sunday
B Nath and Sandip are now friends
Sunday
Dena Drennan updated their profile
Nov 17
Dena Drennan posted a photo
Nov 17
Profile IconDena Drennan and Elif joined GCT Connect
Nov 16
Rachael is now a member of GCT Connect
Nov 13
Bruno André da Silva posted a discussion

about denosumab

hi everyone, I'm brazilian and here anyone know much about denosumab and how it works, I really want know the opinions of you, do you can help me with information?See More
Nov 12
Marina is now a member of GCT Connect
Nov 10
 
 
 

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