GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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Welcome to GCT Connect.


Forum

david

New here, hello! 3 Replies

Started by david. Last reply by Nikki Wegman Nov 5.

Faina Rakhvarger

How do they tell you its a GCT 2 Replies

Started by Faina Rakhvarger. Last reply by Faina Rakhvarger Nov 3.

Pam

Embolization Question 1 Reply

Started by Pam. Last reply by Diane Stern Oct 31.

Blog Posts

John N. Montgomery

Second Post Surgery

Saw the doc again today for my second post surgery appointment. Everything looks good, but he did get on to me a bit about my activity level, told me to town it down a bit for while. I guess there was more swelling than he thought there should be.

I go back in 3 months for a follow up. He said everything looked good, no more tumor!

Posted by John N. Montgomery on November 5, 2009 at 7:46pm

Pam

GCT in Sacrum

My daughter is 22 years old and has just recently been diagnosed with a Giant Cell Tumor in her sacrum. Just curious if anyone with the same diagnosis has had their surgery at Vanderbilt Orthopedic Institute?

Posted by Pam on October 28, 2009 at 2:36pm

Bryan

Denosumab trail started

I started my denosumab trail this week, was quick, just one quick shot. they kept me for extra hour for monitoring. i had a slight headache and dizziness for first hour. i was able to goto work that day, i had a light headache threwout the day. i was fine the following day. i will be going for my nxt shot next week, will keep you posted.

Posted by Bryan on October 21, 2009 at 9:00pm — 1 Comment

susan

Clinical Trial is up next.

Corey finished his last set of chemo treatments and had scans which showed increased activity in the pelvic/sacrum tumors.
We are waiting to hear of the date for the clinical trial. There are a few but which does he qualify for, we'll find out. The tumors cause nausea...I am giving him home infusions of Zofran..and sweating.
Corey sleeps alot due to the pain meds he is taking. The nurses say they have never seen a patient on such high doses.
Will let you all know what & when....I promise! Ta… Continue

Posted by susan on October 18, 2009 at 8:15pm — 2 Comments

Nikki Wegman

Post Op Check Up

About a week ago on 10/6 I went in to see my Doc for my Post Op/Post PT check up. They took a few new Xrays and measured the angles my thumb can bend to now. After a few trys my Xrays came turned out well (the tech said they seem too dark because of the loss of bone density in my hand so I always have to get them redone) my doc checked them out and said everything looks great, no signs of regrowth and my bone graft fused well. At my last appointment he mentioned to bring a flash drive to the nex… Continue

Posted by Nikki Wegman on October 14, 2009 at 1:22pm

Latest Activity

John N. Montgomery added a blog post
Saw the doc again today for my second post surgery appointment. Everything looks good, but he did get on to me a bit about my activity level, told me to town it down a bit for while. I guess there was more swelling than he thought there should be....
on Friday
Anita P and Pam are now friends
on Tuesday
Rober Alamirie and Jessica Elliott are now friends
November 1
A group for GCT Patients.
October 31
Faina Rakhvarger added a discussion
hi i am 22yrs old.. and i have had knee pain for 4 months.. n had Xrays and MRIs done. the first doctor i went to told me there was nothing wrong with me. then i had went to a diff specilist at temple and he told me its a tumor. he sent me for a b...
October 31
Pam added a discussion
My daughter is scheduled to have this done next week. Can anyone tell me what this is? What can I expect? Is this a painful procedure and will she have to stay in the hospital overhight?
October 30
DARLENE CORONA and Sal Fahey joined GCT Connect
October 29
Diane Stern and Pam are now friends
October 29
 
 

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