GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

Photos

Loading…
  • Add Photos
  • View All

Groups

 

Welcome to GCT Connect!

Hey, guys. Just wanted to post a notice here that we get an awful lot of membership requests that are spam. I do my best to weed these out, but if you're ever sent spam by someone on this site or you see it posted in any of the comments, please feel free to let me know. Also, if you are requesting membership, please be patient with me when it comes to approving your membership request, as I am a full time student and a full time stay at home mom. Thanks!

Donate

Forum

Xgeva with embolization?

Started by Jeffrey Allen Kelley on Thursday.

Number of surgeries 15 Replies

Started by John N. Montgomery. Last reply by courtney c Apr 11.

Denosumab 6 Replies

Started by Rachel. Last reply by Rachel Apr 5.

Blog Posts

Surgery #4, 6 month checkup

I had my 6 month checkup today after surgery number 4 last October 2013. They did MRI with contrast, and X-rays. Happy to say that all was clear, no sign of any recurrence and I am healing well. I had been having some pain that was worrying me, but the doctor said a lot of that is due to the hardware and some scarring from all the surgeries. They told me to try not to worry about it.

I am able to do most things, I am back riding my bike, doing yoga and doing the Precore machine at the…

Continue

Posted by John N. Montgomery on April 10, 2014 at 8:09pm — 3 Comments

Babies

Hi everyone:



I've written a few posts about having a GCT/being on the denosumab trial/and trying to start a family. Figured I would provide an update to any of you who might be struggling with the same decision!



I was diagnosed with a GCT in my distal radius in March 2010. I started denosumab immediately. I did have two surgeries and they were awful. At the time of my diagnosis I was 33 and recently engaged. My husband and I really wanted to start a family because neither… Continue

Posted by Meghan on April 4, 2014 at 2:33am — 2 Comments

Post Op!!

Hello, just a little update after my surgery on Friday! All went well, GCT removed, but no cementation! I had been told this may be the case so was expecting it. I'm home after three days in hospital and feeling pretty good with not much pain. I'm only a bit bummed because I'm on crutches with no weight baring for 6 weeks, then partial weight baring for 4. As the cavity was not filled the bone is very thin and fragile, so I have to wait for bone to grow back before putting any weight on my… Continue

Posted by Victoria Hamilton on March 18, 2014 at 2:44am — 1 Comment

Recently Diagnosed with GCT in my upper Tibia

Hi, as I have recently been diagnosed with a GCT, I am looking to make friends and learn more about GCT. In the summer of 2013 I began to notice I pain in my right knee...I'm not one going to doctor and the pain was bearable and I assumed it would go away. By November I was walking with some difficulty and stairs had become noticeably harder(more so coming down than going up). So after some persistence from family, friends and my boss I went to the doctor. He scheduled me in for an X-ray and I… Continue

Posted by Victoria Hamilton on February 28, 2014 at 8:52am — 9 Comments

Update

Went to the doctor last week. Had a good amount of bone growth over the cadaver bone . The doctor was shocked because she didn't think the surgery worked since I didn't have but a small amount of bone growth at the knuckle bone and none on the cadaver bone the previous time. God is faithful ! Much prayer was sent up. In physical therapy now with 50  percent weight baring working up to 75 percent by my next doctors appointment. Hopefully I will be at 100 percent then so I can go back to work!…

Continue

Posted by Mollie Starnes on December 30, 2013 at 11:41am — 3 Comments

Latest Activity

Thomas Ronan and Amy are now friends
2 hours ago
Christina Harkness and Jeffrey Allen Kelley are now friends
yesterday
Jeffrey Allen Kelley joined Ian MacGregor's group
Thumbnail

GCT of the sacrum

Keeping track of problems and progress when this difficult location is involvedSee More
Thursday
Jeffrey Allen Kelley posted a discussion

Xgeva with embolization?

Hi I was wondering if anyone has used the combination of Xgeva and embolization before, and if so how well did it work? i have a GCT about the size of a tennis ball that is growing on my sacrum.It is growing up into my spinal canal between the sacrum and my L5 vertebrae and pressing up against my spinal cord. it is to the point that the nerve damage will not allow me to stand on my own (putting me in a wheelchair) ive only been on Xgeva for about two months, but since January the GCT has gown…See More
Thursday
Jeffrey Allen Kelley posted photos
Apr 14
Jeffrey Allen Kelley updated their profile
Apr 14
Tracy Byrne updated their profile
Apr 13
John N. Montgomery updated their profile
Apr 10
 
 
 

Badge

Loading…

© 2014   Created by Heather.   Powered by

Badges  |  Report an Issue  |  Terms of Service