Iv been struggling last few months now to walk and a month ago i stood up very quick and something went in my knee ..it was soooo painfull i couldnt move my leg without crying (think we all know that awful bone pain) i couldnt walk at all and getting about was a nightmare, my local hospital said it was a fracture but once i got to Stanmore (after a week of trying to get through and being given the run around, which isnt ideal when your in so much pain) stanmore said it wasnt a new fracture but o… Continue

Hi Everyone,

Just wanted to share my story. I am a 28 yr old female who has now had a GCT in my lower right femur 5 times. The first surgery was back in 2002 and I have pretty much had surgery every year and a half since then. I have had some of the best doctors around, but still the tumor persists. I am currently almost 6 month post-op on the 5th surgery and so far things look good. I will be so happy if I make it more than 1.5 years!! Anyway, if anyone has questions, I am more than happy to a… Continue

Corey put up a tremendous fight but was very tired. He closed his eyes and took his last breath while in my arms. He is now my big angel and will always be watching over me. I never left his side...he asked "never leave me Mom" and I stayed with him to the van to carry him to the funeral home. At the hospital they made a plaster print of his hand raised on a heart shape...just beautiful...with all the lines of his hand.
He was always so funny...the nurses loved to care for him...he touched their… Continue

Hello to all and thank you for all the prayers for Corey. I brought him back to the hospital November 5th for his hip bed sore and both heels. With no appetite and weight loss, the sores aren't healing well. Arrangements are made to hospitalize for antibiotics and nutrition and blood transfusion with a hemoglobin at 6.0. Two units prior to the 5th, 1 unit the day of admission...2 days later his count was back down to 6.4. CT-scans were done..neck to pelvis...we got news on Tuesday morning, Nov 1… Continue

Saw the doc again today for my second post surgery appointment. Everything looks good, but he did get on to me a bit about my activity level, told me to town it down a bit for while. I guess there was more swelling than he thought there should be.

I go back in 3 months for a follow up. He said everything looked good, no more tumor!