Giant Cell Tumor Network
The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.
Hi, everyone! I'm writing because I wanted to let you guys know about some changes that are coming to GCT connect. I'm not sure how many of you are aware of what's been going on with me personally over the past few years, but in 2012 my husband and I were blessed with a son who is visually impaired and is also currently being evaluated for autism spectrum disorder. Because of this, I am no longer working or going to school. Due to my reduced income and the costs of keeping this site open, I've decided to move us over to facebook.
I think that this move will help us to stay in better touch since most of us are on facebook everyday anyway, and it will help us to reach more potential members. I've really enjoyed hosting this site for everyone and I hope that we're able to keep GCT Connect alive, even if it's in a different arena. I hope that you guys all understand and are willing to make the move with me. Please find us over at:
This website will remain active through the end of this month. Please feel free to find me on facebook and to become friends with me over there! If anyone has any questions about the move, please don't hesitate to contact me. Thanks for being here all these years! I hope to see each and every one of you over on the facebook page!
All the best,
Started by Sofia Mar 16.
Sadly I found out on Friday that my little friend is back in my knee - same place as last time and obviously much smaller because it's been caught relatively early.
So - back to the original plan. I'll be going under the knife at some point in the next two weeks for a repeat of what we did last time - removing the original cement and replacing it again. Feeling surprisingly OK with it - I mean it's a risk we all live with and I've seen rates of recurrence range from 9% - 34%…Continue
Had my regular 3 month checkup yesterday, Just X-rays this time, all was good. No sign of return, which is good news. That leg feels weird just about all the time now, so I never know if what I am feeling is tumor, or surgery or just because I m old. Haha. Anyway, go back in three months for next checkup. Another MRI with contrast scheduled for that one.
On a happier note I will finish my masters degree in April, woo hoo! Will be glad to have that over and I am never going back to…Continue
Last month went for a MRI and the tumor was back. Wasn't what I wanted to hear but expected it since the last x-ray looked different. This time we are doing the cement since i grew a good amount of bone and my dr thinks it will hold. Which means a lot less down time for me..yaya!! We will have to see. She always lays out several surgery options just in case things don't go as planned. I'm optimistic either way it goes! ABC giant cell in third third metatarsal in left foot.