GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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Welcome to GCT Connect!

Hey, guys. Just wanted to post a notice here that we get an awful lot of membership requests that are spam. I do my best to weed these out, but if you're ever sent spam by someone on this site or you see it posted in any of the comments, please feel free to let me know. Also, if you are requesting membership, please be patient with me when it comes to approving your membership request, as I am a full time student and a full time stay at home mom. Thanks!

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Forum

Xgeva not working 1 Reply

Started by Jacinta Elm. Last reply by Lynn Lepper on Friday.

Biopsy 1 Reply

Started by Laura Parsons. Last reply by Jacinta Elm Sep 19.

Sad news... 29 Replies

Started by Ian MacGregor. Last reply by Roxana Sep 18.

Blog Posts

Good News- 18 month update

When I was getting surgery I used to desperately trawl this website for good news updates. For fitness advice. But it seemed that people who get over also don't return to the site.

I'm not over it. 

But just to recap. I used to dance. I started dancing at the age of 25 and it was my way to instantly be happy. I would dance if hell-fire was raining down on me or if there were knives under my feet. It was my respite from the trials and tribulations of the world. I didn't want to…

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Posted by Cassia Valazquez on September 12, 2014 at 4:00pm — 3 Comments

Fight against GCT

 

My mother, Minda was recently diagnose of having giant cell tumor in her spine specifically located at L5 vertebra. It started last March, she was walking in the house doing chores when she suddenly felt pain in her left legs. She thought its just originally pain. Come May and the pain is still there. She felt a bit relieved when taking some pain meds but it was getting worst. I asked her to seek medical help. We went to ortho and initial diagnose was degenerative disc disease. All…

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Posted by Leah Lacdao on August 26, 2014 at 8:09pm — 2 Comments

Surgery #4, 9 month checkup

Well I can log three more months tumor free into the record book. Had my checkup today and all was clear. They only did X-rays this time, leg and lungs. All looked good. The doctor said there were no changes between this X-ray and the last ones.

The leg is still sore on and off. I am back to running a bit, I can make about 2-3 miles now. The leg will be sore the next day, so I am not running very often. I am back to riding the bike though.

Went China back in May, what an…

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Posted by John N. Montgomery on July 23, 2014 at 9:47pm — 1 Comment

The Accidental Journey - First Post: "The Collar"

5:30 a.m. I open my eyes. Morning light creeps through the blinds; I can hear the sound of traffic, and of birds singing. I shift in the bed… and then I remember what has happened. My collar reminds me...

Read more HERE

Posted by Anne Lower on July 10, 2014 at 1:45pm

Shit

Well... This is the worst thing Ever. I Don't know what happened but suddenly i was on the ground waiting for an ambulance in extreme pain. My leg broke and now after surgery number five i Don't have a human knee anymore. They removed my shitty knee. Hopefully this is it.

Posted by Rebecka Eriksson on May 19, 2014 at 8:57am

Latest Activity

Jorgen Kristensen and Monica Lea Christiansen are now friends
yesterday
Profile IconMatt Jarrett, Ciara Ebbs and Marilou joined GCT Connect
yesterday
Rafael A. and dr gaurav are now friends
Sep 24
CAROL posted a status
"I am now 6 yrs tumor free. Checkups continue every 2 yrs. I will return to Duke when I am 70 yrs old"
Sep 23
Kara gulbranson is now a member of GCT Connect
Sep 21
CAROL updated their profile
Sep 20
Profile IconBrittany Holcomb and Christina Harkness joined Rafael A.'s group
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GCT of the SPINE

Patients affected by GCT in the area of the SPINESee More
Sep 19
Rafael A. and Leah Lacdao are now friends
Sep 19
 
 
 

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