GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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GCT Connect is moving!

Hi, everyone! I'm writing because I wanted to let you guys know about some changes that are coming to GCT connect. I'm not sure how many of you are aware of what's been going on with me personally over the past few years, but in 2012 my husband and I were blessed with a son who is visually impaired and is also currently being evaluated for autism spectrum disorder. Because of this, I am no longer working or going to school. Due to my reduced income and the costs of keeping this site open, I've decided to move us over to facebook.

I think that this move will help us to stay in better touch since most of us are on facebook everyday anyway, and it will help us to reach more potential members. I've really enjoyed hosting this site for everyone and I hope that we're able to keep GCT Connect alive, even if it's in a different arena. I hope that you guys all understand and are willing to make the move with me. Please find us over at:

facebook.com/gctconnect

This website will remain active through the end of this month. Please feel free to find me on facebook and to become friends with me over there! If anyone has any questions about the move, please don't hesitate to contact me. Thanks for being here all these years! I hope to see each and every one of you over on the facebook page!

All the best,

Heather

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Forum

GCT on fifth metatarsal of foot 2 Replies

Started by Susan C. Rucci. Last reply by Susan C. Rucci yesterday.

Lung metastasis of benign GCT 12 Replies

Started by Itay. Last reply by Rafael A. on Thursday.

Miami

Started by Sofia Mar 16.

Blog Posts

15 and scared.

Hello, my name is Darby. When I was 15 I found out I had GCT. I was told,I,was one of,the youngest people in Oklahoma to,have gct. My doctor first said were doing surgery. An it went good. She said,if I got one I,had a 50% I would have another, 9months later I found out I,had my second tumor. They did another surgery but th risk,of having more got higher. About 6months later my doctor did a ct of my chest to,check my lung an they found four more tumors an on top of that they found a third tumor… Continue

Posted by darby wicks on March 22, 2015 at 10:03pm — 1 Comment

Recurrence

Sadly I found out on Friday that my little friend is back in my knee - same place as last time and obviously much smaller because it's been caught relatively early.

So - back to the original plan. I'll be going under the knife at some point in the next two weeks for a repeat of what we did last time - removing the original cement and replacing it again. Feeling surprisingly OK with it - I mean it's a risk we all live with and I've seen rates of recurrence range from 9% - 34%…

Continue

Posted by Thomas Ronan on February 2, 2015 at 3:38am — 5 Comments

Surgery #4, 15 month checkup

Had my regular 3 month checkup yesterday, Just X-rays this time, all was good. No sign of return, which is good news. That leg feels weird just about all the time now, so I never know if what I am feeling is tumor, or surgery or just because I m old. Haha. Anyway, go back in three months for next checkup. Another MRI with contrast scheduled for that one.

On a happier note I will finish my masters degree in April, woo hoo! Will be glad to have that over and I am never going back to…

Continue

Posted by John N. Montgomery on January 31, 2015 at 12:05am — 2 Comments

Another surgery coming up

Last month went for a MRI and the tumor was back. Wasn't what I wanted to hear but expected it since the last x-ray looked different. This time we are doing the cement since i grew a good amount of bone and my dr thinks it will hold. Which means a lot less down time for me..yaya!! We will have to see. She always lays out several  surgery options just in case things don't go as planned. I'm optimistic either way it goes! ABC giant cell in third third metatarsal in left foot. 

Posted by Mollie Starnes on January 17, 2015 at 8:15am — 2 Comments

18 month update

Hi everyone,



Just popped back online for the first time in a few months and so pleased to see everyone is doing so well. It has now been 18 months since I joined the site and things are going really well. I've managed to retain 100% movement in my knee and whilst I won't be running anytime soon I can use the X Trainer and stair machine in the gym to try and keep fit and healthy.



Like a lot of people on this site I suffered more from the mental after effects than the… Continue

Posted by Thomas Ronan on November 3, 2014 at 8:33am — 3 Comments

Latest Activity

Susan C. Rucci and Melissa Chow are now friends
yesterday
Susan C. Rucci joined Melissa Chow's group
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GCT in Florida

Just wondering if there's anyone on here who lives in the Sunshine State!See More
Thursday
darby wicks posted a blog post

15 and scared.

Hello, my name is Darby. When I was 15 I found out I had GCT. I was told,I,was one of,the youngest people in Oklahoma to,have gct. My doctor first said were doing surgery. An it went good. She said,if I got one I,had a 50% I would have another, 9months later I found out I,had my second tumor. They did another surgery but th risk,of having more got higher. About 6months later my doctor did a ct of my chest to,check my lung an they found four more tumors an on top of that they found a third tumor…See More
Mar 22
Trevor Hewson updated their profile
Mar 21
Lomew joined Gemma Dougal's group
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GCT UK

A group for people from the UK who have or know someone who has a GCT
Mar 20
Profile IconLomew and Chris Crowe joined GCT Connect
Mar 19
Trevor Hewson posted a photo

My Denosumab starter kit!

Due to start in the morning, Hospital will administer first few doses.
Mar 18
darby wicks posted a status
"Had anyone taken the treatment interferon?"
Mar 18
 
 
 

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