GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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Welcome to GCT Connect!

Hey, guys. Just wanted to post a notice here that we get an awful lot of membership requests that are spam. I do my best to weed these out, but if you're ever sent spam by someone on this site or you see it posted in any of the comments, please feel free to let me know. Also, if you are requesting membership, please be patient with me when it comes to approving your membership request, as I am a full time student and a full time stay at home mom. Thanks!

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Forum

Cemento-osseous dysplasia 2 Replies

Started by Melissa Chow. Last reply by Melissa Chow on Wednesday.

Anyone Else with a total knee replacement? 8 Replies

Started by Rebecka Eriksson. Last reply by John N. Montgomery on Wednesday.

tumor on finger 5 Replies

Started by angie. Last reply by Judi Reiss Jul 18.

Blog Posts

Surgery #4, 9 month checkup

Well I can log three more months tumor free into the record book. Had my checkup today and all was clear. They only did X-rays this time, leg and lungs. All looked good. The doctor said there were no changes between this X-ray and the last ones.

The leg is still sore on and off. I am back to running a bit, I can make about 2-3 miles now. The leg will be sore the next day, so I am not running very often. I am back to riding the bike though.

Went China back in May, what an…

Continue

Posted by John N. Montgomery on July 23, 2014 at 9:47pm

The Accidental Journey - First Post: "The Collar"

5:30 a.m. I open my eyes. Morning light creeps through the blinds; I can hear the sound of traffic, and of birds singing. I shift in the bed… and then I remember what has happened. My collar reminds me...

Read more HERE

Posted by Anne Lower on July 10, 2014 at 1:45pm

Shit

Well... This is the worst thing Ever. I Don't know what happened but suddenly i was on the ground waiting for an ambulance in extreme pain. My leg broke and now after surgery number five i Don't have a human knee anymore. They removed my shitty knee. Hopefully this is it.

Posted by Rebecka Eriksson on May 19, 2014 at 8:57am

GCT poem

 

I think of you daily in a way of fear



you gave me suffering and made me feel like the end was near.

 …

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Posted by Dolina on May 4, 2014 at 7:00pm — 1 Comment

This may be round three :(

My arm started hurting again about 10 days ago. I go May 8th for my scans. I have so many questions...... I just hope there is no lung mets. I think I need to avoid the medication because of fatigue and lowered immunity. I have some chronic conditions that it would make worse. Unless it's in my lungs. Then I guess there is no choice.



If it's back I hope if they do surgery that they go ahead with a wide resection so this thing quits coming back. I would even consider amputation if I… Continue

Posted by Amanda Smith on April 29, 2014 at 7:15pm

Latest Activity

John N. Montgomery updated their profile
Thursday
John N. Montgomery posted a blog post

Surgery #4, 9 month checkup

Well I can log three more months tumor free into the record book. Had my checkup today and all was clear. They only did X-rays this time, leg and lungs. All looked good. The doctor said there were no changes between this X-ray and the last ones.The leg is still sore on and off. I am back to running a bit, I can make about 2-3 miles now. The leg will be sore the next day, so I am not running very often. I am back to riding the bike though.Went China back in May, what an awesome trip. highly…See More
Thursday
Chris S. updated their profile
Wednesday
Anne Lower joined Rafael A.'s group
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GCT of the SPINE

Patients affected by GCT in the area of the SPINESee More
Jul 15
Rachel M is now a member of GCT Connect
Jul 15
Kendra is now a member of GCT Connect
Jul 13
Joonas updated their profile
Jul 13
Melissa Chow posted a discussion

Cemento-osseous dysplasia

Just wondering if any females, diagnosed with GCT were ever told they had  cemento-osseous dysplasia in their jaw area. Our daughter has had surgery 2x to remove GCT, I don't know if there's a connection between the two.  The cemento diagnosis is apparently pretty common.  The big "but" is, it's common in middle aged African American women. Our daughter is early 20's and white.  The oral surgeon said in all of his years, he's never seen this in someone that is both young and white. Of course…See More
Jul 12
 
 
 

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