GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

Photos

Loading…

Groups

 

Spammers.

Hello, everyone! I'm really sorry about the spammers who have been invading our site lately. I changed the privacy settings a bit, so hopefully that will put a stop to it. Thanks so much to Pam for alerting me to this problem! If anyone else has any concerns, please feel free to email me about it anytime. Thanks!
- Heather

Forum

Diane Stern

Question for those on Denosumab 3 Replies

Started by Diane Stern. Last reply by James 26 minutes ago.

Dolina

Tiredness? 13 Replies

Started by Dolina. Last reply by Amanda Daniel 7 hours ago.

tina puterbaugh

GCT pain management 8 Replies

Started by tina puterbaugh. Last reply by caroline Feb 5.

Blog Posts

Dionne Henry

The day after........

Well it's the day after my surgery and boy did I have a rough night. The pain from my thumb was so intense and throbbing, I couldn't sleep and every position I tried didn't help relieve the pressure. Will be following up with my doctor tomorrow, just to make sure I didn't get any infections. My doctor always has to follow up closely with me because I got a major infection after my first surgery. Scared us and for a doctor to tell you a patient scared him, you know it was serious. Also I will be… Continue

Posted by Dionne Henry on February 3, 2010 at 4:48pm

Shannon Wilson

6 months post op

Hi,

I am happy to say that I am officially 6 months post op from the 5th GCT surgery. And I am CLEAR! Thrilled does not even begin to describe it. I am thankful to God that I have made it this far and I can say I rarely have problems with my leg. What are the chances? I guess I just wanted to share my good news.

Shannon

Posted by Shannon Wilson on February 2, 2010 at 3:57pm — 1 Comment

Amanda Daniel

The "me" in ME

I am 25 almost 26 years old in March. I am a single female. Not much time between being sick and doctors to date. I have one biological brother who is 13 days shy of being a year older than me. I also have 3 wonderful adopted siblings who keep me on my feet at all times. They are 2 girls and the baby is a boy 10, 8, 5. When things were starting to finish with the adoption, things seemed to get all crazy with my health. They all say a little extra prayer when they bless the food for my tumor to g… Continue

Posted by Amanda Daniel on January 31, 2010 at 4:39pm — 1 Comment

John N. Montgomery

Post Op #3

I had another appointment with the surgeon today. I am 4 months post op now. Good News!! He told me I could return to normal activity, he even said I could ski next week if I took it easy and did not hit the moguls!! The advice was to ease into these activities and if the leg began to hurt or swell to stop. Everything else looked great! All is healing well, no sign of any recurrence. He wants to see me back again in 3 months.

The only no I got was on playing rugby, for that he asked me to wait… Continue

Posted by John N. Montgomery on January 19, 2010 at 5:22pm — 1 Comment

Regina Martinkute

My story. Part 2. The waiting.

It was the end of June when I got home from hospital (spending a month there) and was waiting for the results of biopsy. I waited about two weeks. Because I already wasn't able to move much by myself my mom went to the hospital to see the results. The doctors sent me to specialist in another city - Vilnius, where is a big clinic with more experienced doctors. Me and my boyfriend rushed there as soon as we were told. It was about 3-4 hours of driving and it was difficult for me because of the inc… Continue

Posted by Regina Martinkute on January 14, 2010 at 3:57am

Latest Activity

Amanda Daniel As if the tumor isn't enough to drive me crazy my family is doing a good job of it first
yesterday
Jem is now a member of GCT Connect
yesterday
Christina Alamirie added a photo
on Monday
Amanda Daniel Glad the headaches are slowing down because I can't handle back pains plus the headaches. Just can't handle much more.
on Friday
on Friday
Christina Alamirie I'm so excited about my new treatment! For once I finally feel like I'm getting my life back! Now it's time to make up for 5 years I lost!
on Friday
CAROL added a discussion
Has anyone been allergic to hardware in orthopedic restoration ?  I am so afraid I am allergic to titanium in my femur    I am allergic to something  the allergy Dr. says I have histamine response.  It started 6 mo. after surgery  carol
on Thursday
Dionne Henry added a blog post
Well it's the day after my surgery and boy did I have a rough night. The pain from my thumb was so intense and throbbing, I couldn't sleep and every position I tried didn't help relieve the pressure. Will be following up with my doctor tomorrow, jus…
February 3
 
 

Badge

Loading…
 

© 2010   Created by Heather on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service