GCT Connect

Giant Cell Tumor Network

The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.

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Welcome to GCT Connect!

Hey, guys. Just wanted to post a notice here that we get an awful lot of membership requests that are spam. I do my best to weed these out, but if you're ever sent spam by someone on this site or you see it posted in any of the comments, please feel free to let me know. Also, if you are requesting membership, please be patient with me when it comes to approving your membership request, as I am a full time student and a full time stay at home mom. Thanks!

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Forum

Waiting a month for appt? Possible GCT 10 Replies

Started by Mel. Last reply by Jonathan Aug 23.

Cemento-osseous dysplasia 2 Replies

Started by Melissa Chow. Last reply by Melissa Chow Jul 23.

Anyone Else with a total knee replacement? 8 Replies

Started by Rebecka Eriksson. Last reply by John N. Montgomery Jul 22.

Blog Posts

Fight against GCT

 

My mother, Minda was recently diagnose of having giant cell tumor in her spine specifically located at L5 vertebra. It started last March, she was walking in the house doing chores when she suddenly felt pain in her left legs. She thought its just originally pain. Come May and the pain is still there. She felt a bit relieved when taking some pain meds but it was getting worst. I asked her to seek medical help. We went to ortho and initial diagnose was degenerative disc disease. All…

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Posted by Leah Lacdao on August 26, 2014 at 8:09pm

Surgery #4, 9 month checkup

Well I can log three more months tumor free into the record book. Had my checkup today and all was clear. They only did X-rays this time, leg and lungs. All looked good. The doctor said there were no changes between this X-ray and the last ones.

The leg is still sore on and off. I am back to running a bit, I can make about 2-3 miles now. The leg will be sore the next day, so I am not running very often. I am back to riding the bike though.

Went China back in May, what an…

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Posted by John N. Montgomery on July 23, 2014 at 9:47pm — 1 Comment

The Accidental Journey - First Post: "The Collar"

5:30 a.m. I open my eyes. Morning light creeps through the blinds; I can hear the sound of traffic, and of birds singing. I shift in the bed… and then I remember what has happened. My collar reminds me...

Read more HERE

Posted by Anne Lower on July 10, 2014 at 1:45pm

Shit

Well... This is the worst thing Ever. I Don't know what happened but suddenly i was on the ground waiting for an ambulance in extreme pain. My leg broke and now after surgery number five i Don't have a human knee anymore. They removed my shitty knee. Hopefully this is it.

Posted by Rebecka Eriksson on May 19, 2014 at 8:57am

GCT poem

 

I think of you daily in a way of fear



you gave me suffering and made me feel like the end was near.

 …

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Posted by Dolina on May 4, 2014 at 7:00pm — 1 Comment

Latest Activity

Laura Parsons is now a member of GCT Connect
21 hours ago
Leah Lacdao joined Heather's group
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GCT Patients

A group for GCT Patients.
Wednesday
Leah Lacdao posted a blog post

Fight against GCT

 My mother, Minda was recently diagnose of having giant cell tumor in her spine specifically located at L5 vertebra. It started last March, she was walking in the house doing chores when she suddenly felt pain in her left legs. She thought its just originally pain. Come May and the pain is still there. She felt a bit relieved when taking some pain meds but it was getting worst. I asked her to seek medical help. We went to ortho and initial diagnose was degenerative disc disease. All meds given…See More
Wednesday
Leah Lacdao posted a photo

Biopsy Result

This is the biopsy result of my mom
Wednesday
Rebecka Eriksson and Hannah are now friends
Aug 26
Leah Lacdao is now a member of GCT Connect
Aug 26
Caroline Torres updated their profile
Aug 15
Amanda is now a member of GCT Connect
Aug 15
 
 
 

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