Giant Cell Tumor Network
The Giant Cell Tumor Network is a place for people who have or know someone who has giant cell tumors to connect and share information.
Started by Jonathan. Last reply by Richard T on Tuesday.
Started by Miriam Oct 23.
I had my one year check up on Thursday, October 23. Ironically this was exactly one year to the day from the last surgery. I was nervous about this one, the leg has been feeling weird again and I was sure I was headed for another surgery. Good news, all clear. They did an MRI with contrast and lung X-rays. All the scans were clear, no sign of recurrence and everything looked good. They want me back in three months.
Hope that everyone else is doing well. Will check back in three…Continue
Posted by Ronza on October 20, 2014 at 8:30pm
When I was getting surgery I used to desperately trawl this website for good news updates. For fitness advice. But it seemed that people who get over also don't return to the site.
I'm not over it.
But just to recap. I used to dance. I started dancing at the age of 25 and it was my way to instantly be happy. I would dance if hell-fire was raining down on me or if there were knives under my feet. It was my respite from the trials and tribulations of the world. I didn't want to…Continue
My mother, Minda was recently diagnose of having giant cell tumor in her spine specifically located at L5 vertebra. It started last March, she was walking in the house doing chores when she suddenly felt pain in her left legs. She thought its just originally pain. Come May and the pain is still there. She felt a bit relieved when taking some pain meds but it was getting worst. I asked her to seek medical help. We went to ortho and initial diagnose was degenerative disc disease. All…Continue
Well I can log three more months tumor free into the record book. Had my checkup today and all was clear. They only did X-rays this time, leg and lungs. All looked good. The doctor said there were no changes between this X-ray and the last ones.
The leg is still sore on and off. I am back to running a bit, I can make about 2-3 miles now. The leg will be sore the next day, so I am not running very often. I am back to riding the bike though.
Went China back in May, what an…Continue